Day 20 & 21
Life can change in a blink of an eye.
It’s funny because all day I wanted to post because this was the best day we have had in weeks. Kimbell’s line feels so much better! John woke her up at 4 am, thanks honey because I was out cold, and gave her the other nausea drug and she didn’t vomit at all today!!!!! Granted we did a few things and then her and I slept till one but hey no puking! This is huge because for her to get out of here and to the hotel she has to switch all her meds to oral. Kimbell saw Stitch today because she felt good enough to move! They are so wonderful together. Then she even went outside and played on the playground!
When we came back Kimbell wanted to bead beads she was so full of life it was wonderful and then all of a sudden she didn’t have the words. I kept checking to see if she was having seizures but she just was mumbling that she felt weird/dizzy. It lasted minutes, to be honest I don’t know how long it lasted but it lasted long enough for Cate, the NST, to see it and be concerned and then the nurse came in to give meds and she was concerned. Then all of a sudden she was perfectly fine again. Not back to her original state but fine. I have never been so scared in my life. Poor Kimbell I made so many excuses to get out of her room because I had to bawl my eyes out. The doctor came in and looked at her and they are hopeful that she was just having a cluster of seizures that were very short just over and over. We have been through so much with Kimbell but nothing has ever been this scary. One of the concerns her doctor has is that she might have neuro toxicity from all of the chemo. I pray to God that these were seizures and nothing more.
Kimbell’s Hickman is giving us troubles so they made the decision to take her to the OR tomorrow to either replace it, fiddle with it or move it to the other side of her chest. Needless to say this was quite traumatic for Kimbell and hard for us to understand all of it since we are so close to getting out of here. So she is scheduled for 8 am. Now here is the funny part – ePa (my dad) said to the nurse, something to the effect that since he was here it would work and it did!!! Both sides! Everyone about fell over so now the plan is to see how it works overnight and maybe either way go ahead and send her down to see if the IR doc can figure out why this thing is so tempermental!
Kristen if you are reading this we had left overs for lunch and dinner! Thank you so much for everything, we miss you and love you.
Thanks for all the prayers, she’s turning the corner but still needs them. Please pray that this *thing* tonight never happens again.
Love,
Paige, John and Kimbell
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9 thoughts on “Day 20 & 21”
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Sending ((HUGS)) and prayers for healing and answers about her line tomorrow.
Have they put an anticoagulant into the line? There may be a clot that you can dissolve in the line without having to replace or otherwise mess with it if it’s getting stubborn. Yeah, it can happen even if platelets are really low. May be preferable to treat it now rather than wait till it gets wonky again (unless it’s really working perfectly). Sometimes you can flush a line but cannot draw in through it, or it may only function intermittently if there’s a clot dangling at the end of it.
On the subject of clots, arterial clots can cause seizures/strokes. (Hickman is venous). Just something to keep in mind in case another reasonable cause for seizure is not found.
Sending prayers your way, for your continued strength as well as Kimbell’s.
Keeping you in our thoughts and sending hugs. <3
Continuing to pray!
You are in our prayers daily.
Keeping prayers Kimbell is feeling better. What are her blood counts?
John, Paige, and Kimbell… there are so many prayers being offered for Kimbell… you will never realize how many. Love you all. Keeping you close in our heart and in our prayers. b
You are strong Momma. And you are wise, loving and caring. This is horrible for ALL of you but i just know that Kimbell is going to be running around well and with us for a long time. just feel it. God Bless all of you……….Keeping you close.
seeing light at the end of the tunnel???praying for that