Happy Halloween a few days late 🙂 Things have been somewhat stable with Kimbell lately. The great news is that her counts have been stable and appear to have recovered since her August infection, Finally! Praise The Lord. Unfortunately her kidney numbers have almost doubled so we are having to lower some of the nephrotoxic drugs which give her an additional level of protection. She continuous to be nauseas and have GI issues which is leading to even more weight loss. K takes nausea meds around the clock but we had backed off on the amount of meds since she wasn’t throwing up. We are increasing them so maybe she will eat more. She looks good but has lost over 5kg since she was discharged from her initial BMT stay.
On another positive note Kimbell was able to go trick or treating. Of all the costumes she has she ended up wearing one of her white and gold dresses with an angel halo… I couldn’t have been more thankful as dozens of people told her how beautiful she was. This is such a hard road physically and emotionally and so many people have called her a boy in the last couple of months that this was a huge blessing. In true Kimbell spirit she had more fun handing out candy to kids then she did getting candy. This child has such a huge heart.
Thank you all for your prayers and support.
Love,
P, J and K
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So glad you got to go out / felt like going out for Halloween. Sounds like your are achieving small steps forward but still plenty of road yet to go…. 🙂
I love your family BIG!!!
So glad that Kimbell got to enjoy Halloween. Hoping that her nausea gets better soon and she can get some weight back on. Hugs and prayers!