Thyroid Storm again…

Well poor K, things just aren’t going well for her.  Her pulse was in the 160’s the Friday before last so we went to the ER and she was admitted.  They added more drugs which helped her heart and found out she was in a thyroid storm from free T3.  Apparently T3 is way more toxic then T4 so while […]

Thyroid Storm

You wouldn’t think it’s a big deal but apparently it’s a huge deal.  Enough for poor K to be in and out of the hospital, on 4 heart pills a day, high dose steroids, and a drug that can suppress her bone marrow!  As of last week she was down a total of 35 pounds since the beginning of August.  […]

2017…

Well it has been eventful.  I think 2017 is shaping up to be the longest year, we are all ready to see it end.  We moved up K’s annual testing to June b/c she hadn’t been doing so swell.  Just getting sick all of the time.  It was a good visit and her bone marrow biopsy looked great, we were […]

Engraftment Results 2.5 years

Well life is never boring in this household. Kimbell hasn’t been doing so well for more then a few months.  She kept telling me something was wrong and we needed to go to MN.  You would think by now I would just get on a plane and take her but I kept thinking it’s winter so…  Anyhow after a few […]

2 years post Bone Marrow Transplant

It’s hard to believe it has been two years since K’s bone marrow transplant.  In so many ways it feels like a distant memory and in other ways it feels like yesterday.  I’m not sure I ever imagined we could get here.  I mean I hoped, I prayed, I wished but we were out of treatment options for so long […]