Another Day Another Angel

Another Day Another Angel

It never ceases to amaze me, regardless of how many years we may have on Earth it is never enough.  Especially in the world we live in.  You would think to some extent when someone gains their angel wings that Kimbell would be ok.  After all she knows they are going to heaven and that they are no longer in pain but it doesn’t work that way.  She truly believes they are in a better place, which they are, but as with all of us it eats at her.  She truly grieves and I’m not sure I know how to help her grieve.  I should have it figured out by now, after all her first friend passed when K was still very young but I’m as clueless now as I was then.

It is funny how you can live in the same house for years, you wave at your neighbors and in our case we always say hi and genuinely are interested in how our next door neighbor is but really that is the extent of it.  Well last fall our neighbor was diagnosed with brain cancer.  Immediately our hearts were jolted as we know how devastating a diagnosis like that.  What I had no way of knowing was how K would react. She started going over there and talking to her.  She took her some of her hats and who knows what else knowing K!  They talked and K found a true friend, one that she could talk to.  Mrs. Ware was doing better this spring or at least we thought so but on Saturday God decided he needed her more than all of us needed her.  I can honestly say our family is better for knowing her and I’m so grateful for the influence she had on Kimbell.  I’m happy she is no longer having to fight but my heart breaks for her family and K.  Every time she can she runs over there to check on them, although I have a feeling they are helping her.  Today I went over there and found out that they had been following K’s story all this time.  I had no idea.  It is amazing how God works and there is no doubt we benefited from their prayers.  So if all of K’s prayer warriors could now pray for the Ware family I know it would be appreciated.

As for K well she failed her growth hormone test!!  She was so excited.  I mean she ran around celebrating she was so excited.  Then she found out she had to have a brain MRI.  Oh boy she was not happy about that especially when she found out they wouldn’t sedate her.  K is a fighter and not much scares her but let me tell you that MRI machine and her are NOT friends.  Thankfully our wonderful pediatrician gave her an ativan to chill her and God gifted us with the best MRI tech in the country.  Let me tell you if it hadn’t been for the ativan and him we would have never gotten that MRI.  After she finished it, in large part because the tech shortened the scans in half! she made it very clear that she would not be doing that again unless she is under.  No way Jose!  We had McDonald’s for dinner.  Clearly I am happy to supply her with junk food to celebrate!  Monday we got the call that there isn’t any damage to the pituitary gland so once insurance approves the growth hormone shots home healthcare will be out here to start the shots.  K has already put in her request for her favorite nurse. 🙂  Please say prayers that BCBS approves these shots as obviously they are a big deal.

In other news this past week was the week of appointments.  K is on her second antibiotic for a sinus infection.  We need to go pick out glasses for her – she is thrilled let me tell you…  She also found out that her vision will most likely change 3-4 months after she starts the growth hormone shots and then 3-4 months after she starts estrogen replacement…  Through the grace of God she had a normal hearing test although she strongly disagrees with that.  After a zillion conversations turns out that hearing tests only show that the ear knows there is a sound not that the ear and brain process the sound.  What I also don’t understand is how you can have hearing loss then you don’t and then oh ya come back because the hearing loss may be back in a few months.  That is about as crazy as the test only telling you if the ear recognizes there is a sound.  Obviously K and I are very confused.  Clearly there is still a problem because as any of K’s teachers can attest my child would never use subtitles if they were not needed.  She is not a reader!!  One Monday she sees ENT, maybe Dr. M can shed some light.  K is still bleeding out her nose thus the ENT appointment.  Considering she hasn’t grown I doubt there will be anything to cauterize but we shall see!  Last but not least the labs that were drawn for MN for her joint pain didn’t tell us anything.  I’m not sure if that is good or bad.  K wasn’t happy because she wants the pain to go AWAY.  So a prayer for joint pain would be great.

I was going to say that’s it, but that was a lot!  It has been really busy over here.  All our love and prayers to all of you.

Love,

P, K, and J

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John & Paige