These just keep getting longer!! Monday was interesting, her counts came up on Thursday and then went down but not as low as last Monday and she has gained some weight! The power of prayer. The appetite stimulant finally kicked in and Sunday she ate like a normal kid, unfortunately despite the max dose of zofran, ativan and marinol at […]
Ok so it’s the name of a book and movie replaced with K’s name. When we got in the elevator after clinic I looked at K and said “well that was a crappy appointment” her response was stronger than mine and that was the image that instantly popped in my head! Since it is 4 in the morning and I […]
Today was supposed to be a quick day at clinic, but it never works out that way. As the famous Dr. Tolar said weight gain is very positive!! That was so exciting 🙂 of course she celebrated by not drinking or eating until late tonight and then just a little but every little bit counts! The other good news she […]
Really 6 months?!? already? only 6 months… well 6 months post transplant day and change, 7 since we left TX for MN. Things are about the same. She continues to lose weight, kidneys well they are old news, GVHD is better, depression and isolation check, hip/knee pain check, immune system getting better double-check! On the other hand I have been […]
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