We had a great Christmas, and managed to stay home and out of the hospital. That was our number 1 goal! Santa and a few of his very special elves gave K an amazing Christmas despite how she was feeling. Unfortunately the day after Christmas life returned to our normal and we were back at clinic trying to avoid an […]
Today we went to Costco and I ran into a friend. It was so nice to get a hug but also made me realize we have been really busy and pretty much in hiding I suppose. Overwhelmed would probably be a better word for it! I haven’t even been on Facebook in well over a week and reading about everyone […]
Happy Thanksgiving, more than a few days late… The best news John and I were sick over the holiday and Kimbell wasn’t!!! For the first time ever in her life she was healthy while we were sick. So exciting. Kimbell’s kidneys continue to be her constant issue. We are still going to the hospital twice a week and still doing […]
This has been a long month. K’s kidneys, CSA levels and puking are still the theme. Her kidneys aren’t responding to fluids anymore so we decided to trial her off of them. She was doing so awesome with drinking until Sunday night when she wasn’t feeling well. Yesterday she slept all day only waking up to puke so she didn’t […]
This week has just been a rough week. BMT is such a serious journey filled with so many tears, heartbreak, smiles, celebration and pure hell. There were four families on our section (4 sections in MN) of the BMT floor and I fell in love with all of them. I will never ever forget them nor will they ever leave […]
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