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Long update! I haven’t updated in a while because things have just been kind of blah and we didn’t really know anything. Kimbell has continued to go inpatient every 18 days for infusions that last three days. Needless to say it is a pain but it helps her to feel better and she gets two good weeks out of it. […]

BMT 4 yr anniversary, K turned 14 and a never ending puzzle

On July 2 we celebrated K’s 4th Re-Birthday in Alaska.  Every year is truly a blessing.  K seemed to have a rough time this year on our annual trip and tired quickly.  We came home to a slew of tests and it was confirmed that she has generalized myasthenia, inflammation in her intestines and something with her enzymes in short […]

Not a Good Day

A few months ago Kimbell’s left eye started drooping.  Of course K didn’t say anything but John noticed.  They thought it was a tumor but it wasn’t for which we are thankful.  We came to MN last month for her annual transplant visit and ran a ton of tests on her immune system, bmb, mri, pft’s etc.  Everything came out […]

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